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Blog Post by A. About this Blog In this blog I will follow my everyday journey of living with familial hypercholesterolemia or FH. I am sharing my own experience with this inherited disorder, and how I manage it daily — from what literature I read on the topic and what my doctors say to how I live my life what I eat, what medicine I take, how I exercise, etc. This is solely a personal account that might or might not offer some insight on what to expect when diagnosed with this condition.
This blog does not offer advice, in any way, to anyone suffering from this disease. Hi hope this finds everyone doing really well I just had surgery on April 4 of this year. I do OK some things make my chest burns , but other then that i do ok my scars healed really good. I need advice, my 49 year old son had a triple bi pass open heart surgery and I have no idea how are how much to help him. I live 2 hours away and so far he has only wanted his caretaker there. I plan to go this week. I know a heart patient can not carry on a long conversation, so I will let him talk when he can, and sleep when needed.
I have been so worried and sad, he has a huge , hard 6 months ahead. I pray God will guide and protect us both. This is so difficult. Thanks so much for any advice. Catherine, Everyone is different and heals differently.
I just had open heart four weeks ago. I have had such an emotional and spiritual journey. I have forgot how it could effect others. My dad is very concerned about my health, yet insensitive to my new moods. He means well, but it is difficult for now.